9CaKrnQgWEN作者：hope.huanqiu.comgallery关节挛缩症女孩的正能量生活（组图）/e3pmh4858/e7o8kso2r<article><section data-type="gallery"><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110431615.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110422431.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110418750.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110420891.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110449931.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110421976.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img 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src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110435652.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110436706.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110439260.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110441240.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110443364.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110445505.jpg?imageView2/2/w/1260" data-desc=""></i></img><i class="pic-con"><img src="//himg2.huanqiucdn.cn/attachment2010/2013/0826/20130826110447447.jpg?imageView2/2/w/1260" data-desc=""></i></img></section><section data-type="text"><p>【环球网综合报道】关节挛缩症(Arthrogryposis)患者四肢无法活动，甚至连手指的活动也十分受限，而患有此病的5岁女孩阿莉莎·婕婷·哈格斯特龙，却给人们留下了完全不同的印象。</p><p>摄影师詹妮弗·卡其马雷克用三年的时间，记录下了阿莉莎成长的点点滴滴，并于2012年5月，首次公开了其中一部分照片。透过这些照片，人们可以更深入地了解罕见病患者阿莉莎的世界，体会她每日的挣扎与挑战，但最重要的是感受到她具备的惊人毅力。</p><p>2011年，卡其马雷克以阿莉莎的名义创办了一个非营利组织，期望让人与人之间紧密相连，使人们在精神上受到鼓舞，并感染身边其他的人，同时为阿莉莎以及像她这样患有关节挛缩症的孩子们筹措资金，并提供更好的援助。</p></section></article>1377991200000环球网版权作品，未经书面授权，严禁转载或镜像，违者将被追究法律责任。责编：yefang<a href="http://photo.huanqiu.com/gallery/2013-08/2706265.html" >环球网</a>137799120000011["9CaKrnQgWED","9CaKrnQgWEd","9CaKrnQgWDC"]{"gallery":{"members":[{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110431615.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110422431.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110418750.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110420891.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110449931.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110421976.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110437795.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110423613.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110425605.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110426285.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110428608.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110430178.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110433393.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110435652.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110436706.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110439260.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110441240.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110443364.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110445505.jpg"},{"desc":"","url":"\/\/himg2.huanqiucdn.cn\/attachment2010\/2013\/0826\/20130826110447447.jpg"}]}}